Family Life and Friendship Network

I've finally gone through my old guitar music that I typed up several years ago (1993 or so) and reformatted it with a fixed-width font so the chords and text line up. I also organized the music so that it's alphabetized into sections. The favorites section is the stuff people ask me to play the most often. I have a few favorites that are not there but maybe I'll move them there later. I've added a couple songs to this version, fixed some spelling errors, lined up the verses like lines of poetry, and done a few other minor improvements. I'll just call it version 2.

Friends and Family,

I'm writing my 2009 newsletter late this year because I wanted to include the holidays at the end of the year. As all of you know, 2009 was a year filled with the highest highs and the lowest lows of my life. There isn't a whole lot new that I can say beyond what's already on my blog. This newsletter and blog post will bring together those posts, and add a little more.

Since the last time I wrote, we've celebrated the three major holidays: Thanksgiving, Christmas, and New Year's Day. We also celebrated two birthday's: Julie's and Benjamin's. Julie loved planning for these holidays, and I followed along, happy that she wanted to do the planning. This year it was all in my hands to make sure the holidays were still wonderful. A part of me wanted to hide in a corner and wait for them to pass by. I can understand why the bereaved sometimes do just that.

I am grateful that so many people are looking out for me still. I've had a growing number of people asking me how I'm doing lately and thought maybe I'll take a moment and say how I am doing. I'm doing ok, I think, considering all things, but I'm also hurting more than I thought I would. I endured watching Julie's health fail, and got by alright because I was serving her and, honestly, because she was still there. Now she's physically gone and I don't have her to put all my focus on.

Friends and family,

One of Julie's dear friends, Susie, sent me this priceless email that Julie sent around about herself nearly 3 years ago. This thoughtful email was only months before we found Julie's tumor. She sent this the day after her birthday. I hope some of you enjoy this as much as I do every time I read it again. I remember her showing this to me before she sent it. So here it is, a letter from Julie Johnson Stout.

Brandon

Most people seem to agree with my perspective that I should not just take any job for the sake of having at least something. There are a few who don't understand why. This blog is to help anyone who wonders about this understand why.

Gold's Gym offers a lot, but the cost is too great. I'm not talking about money, the financial cost alone isn't all that much. I'm talking about supporting a company that doesn't care about people. Let me clarify here that I'm talking about the corporate offices, not the employees you meet at the gym. Unfortunately, it's the corporate offices that represent the company to me, and that's why I must do my civic duty and encourage anyone I can not to join Gold's Gym. I'll tell a little story, my story, to elaborate.

I'd like to thank my sisters for the hours of work they put into making this transcript of Julie's funeral. I'll be posting the audio files when they are available. The pdf file attached to this post is the transcript. If anyone sees any errors, please let me know.

Brandon

This obituary is in the Salt Lake Tribune, Deseret News, and The Daily Herald:

My dear wife Julie passed away Sunday at 13:00. I stayed home from church to care for Julie, and my mom stayed home with me. I was preparing to move Julie to the hospital bed so she would be ready for guests through the day, and stopped to send an email. She passed away in the few minutes I was not sitting at her side. When I returned to her, she was gone. She went without a sound. Her long awaited freedom has come. She stands free from the shackles of the cancer that so changed her life over 2 years ago.

Julie has lost most of what and who she is. One of the only things left to her is her smile, but I have to ask for it to get it. Even then, she doesn't always respond. Another thing remains of her old self - her eyes still have the intensity they had. Julie speaks even less than the last update, and sometimes she doesn't even respond to yes or no questions. When she does speak, it's often nonsense words. She usually remembers my name, and given time, she usually remembers the names of her children. I'm happy that our names were some of the last words to leave her vocabulary.

As expected, Julie's health continues to decline. She has stopped talking most of the time now. I took her for a ride the other day and it was very odd how quite things were with her sitting beside me since she usually talks so much I miss turns and have to double back. She is eating less. I have to support most of her weight now whenever I move her to or from her wheelchair. A couple months ago, I could usually figure out what she wanted to say. Now, when she does speak, I often can't figure out what she wants to say, and when I do, it often takes much longer.

This was an article on the bake sale my sisters AngeLena Anderson and Amberleah Stucky planned to help our family:

This was an article about our family featured in both the Magna Times and the West Valley City News:

Cyprus High classmates rally with others to lend a hand to Julie Johnson Stout and her family

Classmates and others pitch in to give Julie the beautiful yard she always wanted.

By Troy Miller
Staff Writer

(West Valley City, Ut.)—Former Cyprus High students showed their school spirit on May 1, 2009, when they helped a former classmate who is dying of a brain tumor.

I've been wanting to post something on how Julie's doing for a while, and now it shows that it's been a while since I'm getting more and more inquiries about her health all the time. I'll back up a bit to cover since the day we were on KSL together.

My parents, my children, Julie and I, and other friends and family were on KSL today to show the world that at times of trial and need, friends and family can still make amaz

I've written a letter to ask for help. It's intended for sources that can provide longer-term assistance, local business that hopefully will help me fund a non-profit organization that can provide the same help later on for others after helping us out. It's not intended as much for individuals and families that this blog mostly reaches, but you can help by circulating this letter to it's intended audience. I'll put the contents of the letter here, but I'll likely revise it over time, and probably won't revise it on this page each time, though I may update it here occasionally.

After Julie's biopsy a year and a half ago, we learned that Julie has an Anaplastic Astrocytoma. I've learned recently that her astrocytoma has a gliomatosis cerebri growth pattern. They might have known about that from the start, but it's new to me. Either one of these have a grim prognosis, and Julie has both. Some of you who have not had a chance to talk to her wonder what I mean when I try to explain how it is difficult for her to communicate. People who suffer from strokes that damage the left side of the brain often develop aphasia.

Monday's scan results did not show as much cancer cell growth as the previous scan. Here are two points directly from the MRI Brain scan report:

We finally were able to meet with a doctor about Julie's last MRI brain scan, which was done just over a month ago. It was delayed because Julie's former doctor did not receive the scans over the network the day we had our appointment (the same day as the scan). He did call us after about a week, and I've already blogged about the phone call. We got an appointment with Julie's former doctor a week after the call (2 weeks after the scan), but he was not there. He took a leave of absence for personal reasons that very day, with no indication if or when he would return.

Dr. Glantz called me today with the results. He said the difference is so minor that not all doctors agree, but he (the chief chemotherapy neuro-oncologist) and Dr. Fultz (the Chief nero-surgeon) both think it looks a little worse. He discussed a couple more treatments we might try, and one of them is a new treatment they are testing. We didn't decide on anything because we both prefer to make the decision in a physical meeting rather than over the phone. I'll be setting up an appointment sometime today when they call me back.

I started out 2008 working for Linux Networx, a company I had only started working for 3 months before the year began. The investors, those who owned the company, had a strange sense of humor since they decided to give the whole company a very unique Valentine's day present. I came in to work that day, and went home a short time later with the information from HR on how to continue benefits since the company no longer existed. I quickly found another job with Treeline Group, starting the beginning of March. Treeline Group's the smallest company I've worked for yet.

I've been asked by a few friends why I don't support same gender marriage. I'll give a few reasons here in my blog. It has nothing to do with equal rights. It has everything to do with what is right for our country, and for children everywhere. As a member of the Church of Jesus Christ of Latter-day Saints, as a Christian, and as a scientist, I must say marriage is for a man and a woman.

An article in Reporter-Times, a newspaper for Martinsville and Morgan County in Indiana, reported the capture of a bank robber. My cousin Joe Stout helped them catch the bank robber. Since newspaper articles don't stay on the web, I'm putting the contents on my web site. I've already sited the original reference, and I'll provide a link to the original article for as long as the article remains online.

I got to met with Julie's doctor last week to discuss pending changes in Julie's treatment plan. She is finally done with her Temodar treatment, but the battle isn't over yet. Julie still has some cancer cells that resist Temodar. The new cancer cells are all developing very close to the top of her spinal column, but still in her brain. The new spots are very small, and Doctor Glantz is confident we can successfully treat them. The new treatment plan will begin in a couple weeks, with two different forms of chemotherapy.

We finally bought a house! Julie and I have lived in Utah County for all of our marriage, but given our circumstances, we decided it was time to move back to West Valley City. We ended up buying a house one street over from where I grew up. I went to the ward I grew up in for one week after we moved, then they changed the boundaries, and I'm in a new ward. I'll post some pictures of the house soon, as well as several other overdue pictures.